Kathy Skettos's blog

Raising Awareness for Rare Diseases

Hi, my name is Renee ... Personal Assistant of OPA-cize™.  I am also Ambassador for Steve Waugh Foundation. My role as Ambassador is to help raise awareness of Rare Diseases. It's my privilege and goal to inspire people and to raise awareness of Rare disease. I'm involved in many exciting fundraisers, projects, talking at charity events, media & interviews for magazines. I want everyone working together to make a big difference to people like me living with a Rare Condition who don't get any help or support from anywhere else.